The Care of HIV-Infected Adults in the United States
Samuel A. Bozzette, M.D., Ph.D., Sandra H. Berry, M.A., Naihua Duan, Ph.D., Martin R. Frankel, Ph.D., Arleen A. Leibowitz, Ph.D., Doris Lefkowitz, Ph.D., Carol-Ann Emmons, Ph.D., J. Walton Senterfitt, R.N., M.P.H., Marc L. Berk, Ph.D., Sally C. Morton, Ph.D., Martin F. Shapiro, M.D., Ph.D., Ronald M. Andersen, Ph.D., William E. Cunningham, M.D., M.P.H., Marvin Marcus, D.D.S., M.P.H., Neil S. Wenger, M.D., Leslie A. Athey, M.S., Stephen M. Smith, M.A., Eric G. Bing, M.D., Julie A. Brown, B.A., M. Audrey Burnham, Ph.D., Dana P. Goldman, Ph.D., David E. Kanouse, Ph.D., Joan W. Keesey, B.A., Daniel F. McCaffrey, Ph.D., Judith F. Perlman, M.A., Mark A. Schuster, M.D., Ph.D., Paul D. Cleary, Ph.D., John A. Fleishman, Ph.D., Ron D. Hays, Ph.D., J. Allan McCutchan, M.D., Douglas Richman, M.D., for The HIV Cost and Services Utilization Study Consortium
Background and Methods In order to elucidate the medical careof patients with human immunodeficiency virus (HIV) infectionin the United States, we randomly sampled HIV-infected adultsreceiving medical care in the contiguous United States at afacility other than a military, prison, or emergency departmentfacility during the first two months of 1996. We interviewed76 percent of 4042 patients selected from among the patientsreceiving care from 145 providers in 28 metropolitan areas and51 providers in 25 rural areas.
Results During the first two months of 1996, an estimated 231,400HIV-infected adults (95 percent confidence interval, 162,800to 300,000) received care. Fifty-nine percent had the acquiredimmunodeficiency syndrome according to the case definition ofthe Centers for Disease Control and Prevention, and 91 percenthad CD4+ cell counts of less than 500 per cubic millimeter.Eleven percent were 50 years of age or older, 23 percent werewomen, 33 percent were black, and 49 percent were men who hadhad sex with men. Forty-six percent had incomes of less than$10,000 per year, 68 percent had public health insurance orno insurance, and 30 percent received care at teaching institutions.The estimated annual direct expenditures for the care of thepatients seen during the first two months of 1996 were $5.1billion; the expenditures for the estimated 335,000 HIV-infectedadults seen at least as often as every six months were $6.7billion, which is about $20,000 per patient per year.
Conclusions In this national survey we found that most HIV-infectedadults who were receiving medical care had advanced disease.The patient population was disproportionately male, black, andpoor. Many Americans with diagnosed or undiagnosed HIV infectionare not receiving medical care at least as often as every sixmonths. The total cost of medical care for HIV-infected Americansaccounts for less than 1 percent of all direct personal healthexpenditures in the United States.
Source Information
From RAND Health, Santa Monica, Calif. (S.A.B., S.H.B., N.D., A.A.L., J.W.S., S.C.M., M.F.S.); the Veterans Affairs San Diego Healthcare System, San Diego, Calif., and the University of California at San Diego, La Jolla (S.A.B.); the University of California at Los Angeles (A.A.L., M.F.S.); the National Opinion Research Center, Chicago (M.R.F., C.-A.E.); Baruch College, City University of New York, New York (M.R.F.); Project Hope, Bethesda, Md. (M.L.B.); and the Agency for Health Care Policy and Research, Rockville, Md. (D.L.). Other authors were Ronald M. Andersen, Ph.D., William E. Cunningham, M.D., M.P.H., Marvin Marcus, D.D.S., M.P.H., and Neil S. Wenger, M.D., University of California at Los Angeles; Leslie A. Athey, M.S., and Stephen M. Smith, M.A., National Opinion Research Center, Chicago; Eric G. Bing, M.D., Drew University, Los Angeles; Julie A. Brown, B.A., M. Audrey Burnham, Ph.D., Dana P. Goldman, Ph.D., David E. Kanouse, Ph.D., Joan W. Keesey, B.A., Daniel F. McCaffrey, Ph.D., Judith F. Perlman, M.A., and Mark A. Schuster, M.D., Ph.D., RAND Health, Santa Monica, Calif.; Paul D. Cleary, Ph.D., Harvard Medical School, Boston; John A. Fleishman, Ph.D., Agency for Health Care Policy and Research, Rockville, Md.; Ron D. Hays, Ph.D., RAND Health, Santa Monica, Calif., and the University of California at Los Angeles; J. Allan McCutchan, M.D., and Douglas Richman, M.D., University of California at San Diego, La Jolla.
Address reprint requests to Dr. Bozzette or Dr. Shapiro, HCSUS Office, RAND, 1700 Main St., Santa Monica, CA 90407-2138.
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