Each year in the United States, approximately 50,000 childrendie and 500,000 children cope with life-threatening conditions.Worldwide these numbers are in the millions.1,2 Such childrenand their families require comprehensive, compassionate, anddevelopmentally appropriate palliative care.
Palliative care is a philosophy of care that evolved from thehospice philosophy to meet the gaps in care for seriously illand dying patients. The aims of pediatric palliative care shouldbest intersect with the aims of curing and healing, and thisapproach should be instituted when diagnosis, intervention,and treatment are not limited to a disease process, but ratherbecome instrumental . . . [Full Text of this Article]
Approaches to and Success of Pediatric Palliative Care
Assessment and Management of Pain and Symptoms
Emotional and Spiritual Needs
Bereavement Care
Advance Care Planning
Barriers to Care
Conclusions
Source Information
From the Pediatric Palliative Care Program, Children's Hospital of Wisconsin, Milwaukee (B.P.H., A.M.B.); the Department of Pediatrics, Division of HematologyOncology (B.P.H., A.M.B.), and the Department of Internal Medicine, Division of Neoplastic Diseases and Related Disorders (D.W.), Medical College of Wisconsin, Milwaukee; the Department of Pediatric HematologyOncology, Pediatric Palliative Care, Children's Hospital at the Cleveland Clinic, Cleveland (J.M.H.); and the Palliative Care Center, Froedtert Memorial Lutheran Hospital, Milwaukee (D.W.).
Address reprint requests to Dr. Himelstein at the Department of Pediatrics, Division of HematologyOncology, Medical College of Wisconsin, 9000 W. Wisconsin Ave., MS 792, Milwaukee, WI 53201, or at bhimelstein@chw.org.
Hendrickson, K., McCorkle, R.
(2008). A Dimensional Analysis of the Concept: Good Death of a Child With Cancer. Journal of Pediatric Oncology Nursing
25: 127-138
[Abstract]
Sheetz, M. J., Bowman, M.-A. S.
(2008). Pediatric Palliative Care: An Assessment of Physicians' Confidence in Skills, Desire for Training, and Willingness to Refer for End-of-Life Care. AM J HOSP PALLIAT CARE
25: 100-105
[Abstract]
Lanken, P. N., Terry, P. B., DeLisser, H. M., Fahy, B. F., Hansen-Flaschen, J., Heffner, J. E., Levy, M., Mularski, R. A., Osborne, M. L., Prendergast, T. J., Rocker, G., Sibbald, W. J., Wilfond, B., Yankaskas, J. R., on behalf of the ATS End-of-Life Care Task Force,
(2008). An Official American Thoracic Society Clinical Policy Statement: Palliative Care for Patients with Respiratory Diseases and Critical Illnesses. Am. J. Respir. Crit. Care Med.
177: 912-927
[Full Text]
Monterosso, L., Kristjanson, L. J.
(2008). Supportive and palliative care needs of families of children who die from cancer: an Australian study. Palliat Med
22: 59-69
[Abstract]
Monterosso, L., Kristjanson, L. J., Aoun, S., Phillips, M. B.
(2007). Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service. Palliat Med
21: 689-696
[Abstract]
Korones, D. N.
(2007). Pediatric Palliative Care. Pediatr. Rev.
28: e46-e56
[Full Text]
Feudtner, C., Feinstein, J. A., Satchell, M., Zhao, H., Kang, T. I.
(2007). Shifting Place of Death Among Children With Complex Chronic Conditions in the United States, 1989-2003. JAMA
297: 2725-2732
[Abstract][Full Text]
Bluebond-Langner, M., Belasco, J. B., Goldman, A., Belasco, C.
(2007). Understanding Parents' Approaches to Care and Treatment of Children With Cancer When Standard Therapy Has Failed. JCO
25: 2414-2419
[Abstract][Full Text]
Robinson, M. R., Thiel, M. M., Backus, M. M., Meyer, E. C.
(2006). Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit. Pediatrics
118: e719-e729
[Abstract][Full Text]
Surkan, P. J, Dickman, P. W, Steineck, G., Onelov, E., Kreicbergs, U.
(2006). Home care of a child dying of a malignancy and parental awareness of a child's impending death. Palliat Med
20: 161-169
[Abstract]
Jalmsell, L., Kreicbergs, U., Onelov, E., Steineck, G., Henter, J.-I.
(2006). Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up. Pediatrics
117: 1314-1320
[Abstract][Full Text]
Fowler, K., Poehling, K., Billheimer, D., Hamilton, R., Wu, H., Mulder, J., Frangoul, H.
(2006). Hospice Referral Practices for Children With Cancer: A Survey of Pediatric Oncologists. JCO
24: 1099-1104
[Abstract][Full Text]
Jotkowitz, A B, Glick, S
(2006). The Groningen protocol: another perspective.. J. Med. Ethics
32: 157-158
[Abstract][Full Text]
Meyer, E. C., Ritholz, M. D., Burns, J. P., Truog, R. D.
(2006). Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations. Pediatrics
117: 649-657
[Abstract][Full Text]
Vince, T, Petros, A
(2006). Should children's autonomy be respected by telling them of their imminent death?. J. Med. Ethics
32: 21-23
[Abstract][Full Text]
Mack, J. W., Hilden, J. M., Watterson, J., Moore, C., Turner, B., Grier, H. E., Weeks, J. C., Wolfe, J.
(2005). Parent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer. JCO
23: 9155-9161
[Abstract][Full Text]
Kreicbergs, U., Valdimarsdottir, U., Onelov, E., Bjork, O., Steineck, G., Henter, J.-I.
(2005). Care-Related Distress: A Nationwide Study of Parents Who Lost Their Child to Cancer. JCO
23: 9162-9171
[Abstract][Full Text]
Hinds, P. S., Drew, D., Oakes, L. L., Fouladi, M., Spunt, S. L., Church, C., Furman, W. L.
(2005). End-of-Life Care Preferences of Pediatric Patients With Cancer. JCO
23: 9146-9154
[Abstract][Full Text]
Donnelly, J. P., Huff, S. M., Lindsey, M. L., McMahon, K. A., Schumacher, J. D.
(2005). The needs of children with life-limiting conditions: A healthcare-provider-based model. AM J HOSP PALLIAT CARE
22: 259-267
[Abstract]
Goldie, J, Schwartz, L, Morrison, J
(2005). Whose information is it anyway? Informing a 12-year-old patient of her terminal prognosis. J. Med. Ethics
31: 427-434
[Abstract][Full Text]
Hurwitz, C. A., Duncan, J., Wolfe, J.
(2004). Caring for the Child With Cancer at the Close of Life: "There Are People Who Make It, and I'm Hoping I'm One of Them". JAMA
292: 2141-2149
[Abstract][Full Text]
Kreicbergs, U., Valdimarsdottir, U., Onelov, E., Henter, J.-I., Steineck, G.
(2004). Talking about Death with Children Who Have Severe Malignant Disease. NEJM
351: 1175-1186
[Abstract][Full Text]
Wolfe, L.
(2004). Should Parents Speak with a Dying Child about Impending Death?. NEJM
351: 1251-1253
[Full Text]
Gothelf, D., Cohen, I. J., Himelstein, B. P., Hilden, J. M.
(2004). Pediatric Palliative Care. NEJM
351: 301-302
[Full Text]