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Volume 351:612-614 August 5, 2004 Number 6
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Registries and Informed Consent

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To the Editor: The Scottish Executive project Have a Heart Paisley was designed to improve the delivery of health care between primary and secondary care providers. Integral to its success is a cardiac-disease registry. European legislation governing the collection of personal data for such registries creates challenges1,2 similar to those outlined in a report by Tu et al. (April 1 issue)3 and in an editorial by Ingelfinger and Drazen.4

Before developing a strategy to meet these challenges, we sought advice from officers of the United Kingdom Data Protection Act and General Medical Council. On the basis of this advice, an . . . [Full Text of this Article]


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