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Correspondence
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Volume 354:530-531 February 2, 2006 Number 5
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Health-Information Altruists

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 by Kohane, I. S.
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To the Editor: Project planners who are seeking to cultivate a network of patients willing to provide their health information to genomic-cohort investigators, as described by Kohane and Altman (Nov. 10 issue),1 cannot afford to ignore how increasing commercialization has complicated the social contract for biomedical research.2 In fact, the very projects in Iceland and Estonia cited by the authors as precedents for the success of health-information altruism have foundered, owing to controversies over the commercial use of personal health records.3,4

In this era of restrictive licensing, privatized medicine, and spiraling health care costs, any call for collective altruism from . . . [Full Text of this Article]




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