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Volume 350:85-86 January 1, 2004 Number 1
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The Charitable Trust as a Model for Genomic Biobanks

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by Winickoff, D. E.
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To the Editor: Biobanks are a crucial resource for the advancement of genomic discoveries into clinical care. A charitable-trust model for biobanks, proposed by Winickoff and Winickoff (Sept. 18 issue),1 has merit. However, the premise that this model is the most effective way to protect patients' interests is untested. For-profit organizations can be structured with identical safeguards; Ardais and other corporations have these as well as additional safeguards. Although a charitable-trust model may be interesting conceptually, we believe it would face substantial challenges in overcoming the financial and organizational difficulties involved in effectively managing a biobank to protect patients' interests . . . [Full Text of this Article]



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