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Volume 358:2661-2663 June 19, 2008 Number 25
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Keeping Pace with the Times — The Genetic Information Nondiscrimination Act of 2008
Kathy L. Hudson, Ph.D., M.K. Holohan, J.D., and Francis S. Collins, M.D., Ph.D.

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Laws and institutions must go hand in hand with the progress of the human mind. As that becomes more developed, more enlightened, as new discoveries are made, new truths disclosed, and manners and opinions change with the change of circumstances, institutions must advance also, and keep pace with the times.

— Thomas Jefferson, July 12, 1810

When the first federal legislation to prevent the misuse of genetic information was introduced in 1995, many in the health care, research, and policy communities considered the measure to be forward looking. Others called it premature. After all, scientists were just getting ready to . . . [Full Text of this Article]


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Dr. Hudson is director of the Johns Hopkins Genetics and Public Policy Center, supported by the Pew Charitable Trusts, in Washington, DC. Ms. Holohan is a senior health policy analyst at, and Dr. Collins is director of, the National Human Genome Research Institute, National Institutes of Health, Bethesda, MD.

A video interview with Dr. Collins can be viewed at www.nejm.org.


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